Family as Faculty Program

Family as Faculty Program Recognizes Families as Experts in Their Own Care

Family as Faculty

Holland Bloorview Kids Rehabilitation Hospital was the first building that Alifa’s son Junayd didn’t want to immediately flee. At the time Junayd was just four years old and newly diagnosed with autism spectrum disorder and ADHD. Junayd’s reaction made Alifa curious about what made the hospital different, and she soon became immersed in the hospital community, first becoming a Holland Bloorview Family Leader, and subsequently joining the Family as Faculty program.

As a leading teaching hospital, Holland Bloorview looks for innovative approaches to training the next generation, and that includes giving our families a voice. Family as Faculty members are uniquely positioned to participate in teaching or facilitation roles, carrying a combination of their related training and lived experience. They participate as equal partners in teaching and learning not only across Holland Bloorview, but beyond our walls to both academic and clinical settings in the community.

“The idea is that families are experts in their own care, and are therefore the best people to convey that knowledge to front-line staff,” says Alifa. “Not only does it give families a voice in the health-care system, but clinicians and staff gain newfound perspectives on how to holistically support their patients.”

Family as Faculty impacts decision making in several ways, including co-supervising clinical placement students, representing Holland Bloorview at conferences and other special events, developing and delivering client and family-centred care training across the hospital and community, and more.

This program has helped Alifa see first-hand how personal experience can change practice.

“Too often in health care, people ask what’s the matter with you, or have the perspective that something needs to be treated. With Family as Faculty it’s more about asking: what matters to you?” says Alifa.  “As a result, hospital staff learn new levels of empathy, and the discussion moves past the clinical lens to incorporate what is impactful and most meaningful to families.”

 

 

“Too often in health care, people ask what’s the matter with you, or have the perspective that something needs to be treated. With Family as Faculty it’s more about asking: what matters to you?”

“Too often in health care, people ask what’s the matter with you, or have the perspective that something needs to be treated. With Family as Faculty it’s more about asking: what matters to you?”

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